Integration of heterogeneous medical and biological data with electronic personal health records
Journal
Medical Informatics, Biometry and Epidemiology (MIBE)
Date Issued
2023-07-04
Author(s)
Savoska, Snezana
Ristevski, Blagoj
Blazheska-Tabakovska, Natasha
Jolevski, Ilija
Bocevska, Andrijana
Trajkovik, Vladimir
Abstract
The shortage of data for patients with chronic and other diseases and
previous medical treatments shows significant weakness in the diagnoSnezana Savoska1
Blagoj Ristevski1
sis and treatment of patients. Due to the healthcare system insufficiency,
Natasha
Blazheska-Tabakovska1
patients with comorbidities might not survive the diseases, especially
when the disease is novel. The lack of information on patients’ genetic
disorders, especially when they are unaware of them, also contributes Ilija Jolevski1
to increased patient deaths. This conveys the necessity to integrate Andrijana Bocevska1
medical and health data with various biological omics and other data,
Vladimir Trajkovik2
especially in pandemic circumstances. Patients’ health data matters
are apparent, but they are stored in multiple hospitals and health systems such as electronic health records (EHRs), healthcare institutions, 1 Faculty of Information and
Communication and laboratories. Furthermore, biological data are often not integrated
and cannot be used by patients, physicians, and specialists to treat Technologies, University “St.
particular diseases. Although the urgent need for healthcare and med- Kliment Ohridski” – Bitola,
ical data integration is apparent, personal data protection regulations Republic of Macedonia
are severe. They do not allow much progress in the area without imple- 2 Faculty of Computer Science menting security and privacy standards for patient healthcare data. and Engineering, “Ss. Cyril
One solution for this issue is setting a personal health record (PHR) as and Methodius” University of
an integrative system for the patient. Many ontological frameworks have Skopje, Republic of
been proposed to unify the record formats, but none of them is accepted Macedonia
as a healthcare standard. The efforts toward approving the Health Level
Seven (HL7) standards and the common medical coding systems ensure
further data integration. Some efforts are made to associate particular
diseases with data obtained from external environmental sensors that
measure disease-associated data. Using these data, which are called
exposome, the increasing symptoms of particular diseases influenced
by external factors can be clarified. This paper suggests a cloud-based
model for integrating healthcare and medical data from different sources
such as EHRs, health information systems, and measurement sensors
into the PHR as the first stage toward integrating patient health data.
Besides the patients’ personal and clinical data, various omics data
should be integrated for improved individualized disease prognosis and
treatment of the patients. These data are stored in the cloud following
the required data security and privacy standards.
previous medical treatments shows significant weakness in the diagnoSnezana Savoska1
Blagoj Ristevski1
sis and treatment of patients. Due to the healthcare system insufficiency,
Natasha
Blazheska-Tabakovska1
patients with comorbidities might not survive the diseases, especially
when the disease is novel. The lack of information on patients’ genetic
disorders, especially when they are unaware of them, also contributes Ilija Jolevski1
to increased patient deaths. This conveys the necessity to integrate Andrijana Bocevska1
medical and health data with various biological omics and other data,
Vladimir Trajkovik2
especially in pandemic circumstances. Patients’ health data matters
are apparent, but they are stored in multiple hospitals and health systems such as electronic health records (EHRs), healthcare institutions, 1 Faculty of Information and
Communication and laboratories. Furthermore, biological data are often not integrated
and cannot be used by patients, physicians, and specialists to treat Technologies, University “St.
particular diseases. Although the urgent need for healthcare and med- Kliment Ohridski” – Bitola,
ical data integration is apparent, personal data protection regulations Republic of Macedonia
are severe. They do not allow much progress in the area without imple- 2 Faculty of Computer Science menting security and privacy standards for patient healthcare data. and Engineering, “Ss. Cyril
One solution for this issue is setting a personal health record (PHR) as and Methodius” University of
an integrative system for the patient. Many ontological frameworks have Skopje, Republic of
been proposed to unify the record formats, but none of them is accepted Macedonia
as a healthcare standard. The efforts toward approving the Health Level
Seven (HL7) standards and the common medical coding systems ensure
further data integration. Some efforts are made to associate particular
diseases with data obtained from external environmental sensors that
measure disease-associated data. Using these data, which are called
exposome, the increasing symptoms of particular diseases influenced
by external factors can be clarified. This paper suggests a cloud-based
model for integrating healthcare and medical data from different sources
such as EHRs, health information systems, and measurement sensors
into the PHR as the first stage toward integrating patient health data.
Besides the patients’ personal and clinical data, various omics data
should be integrated for improved individualized disease prognosis and
treatment of the patients. These data are stored in the cloud following
the required data security and privacy standards.
Subjects
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